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San Diego-based aTyr Pharma (“aTyr”), a biotherapeutics company engaged in the discovery and development of Physiocrine-based therapeutics to address rare diseases, announced today that Resolaris™ has been granted Orphan Drug Designation… Read More »
aTyr Receives U.S. FDA Orphan Designation for FSHD drug
Volleyball fundraiser
By Russell Caratenuto III This May 6, I’m organizing an FSHD fundraiser with the East Brunswick High School boys volleyball team in order to raise awareness for FSHD. As I… Read More »
Bone Health in FSHD–What do I need to know?
Special talk by Dr. Carla Grosmann from the Kennedy Krieger Institute Mid-Atlantic Patient Meeting Saturday, May 2, 2015. Noon-3:00 PM Will be live streamed over the FSH Society’s YouTube channel. Bone… Read More »
The very model of a modern epigenetic disease
Yes, we’re talking about FSHD On those rare occasions (such as the FSHD Connect meeting) when large numbers of individuals with FSHD gather in one place, one can’t help but… Read More »
Kelli O’Hara dazzles in “The King and I”
Congratulations to FSH Society honorary board member Kelli O’Hara for her much-anticipated debut in the role of Anna in the current Broadway revival of “The King and I.” The production… Read More »