None of us walks alone. There is always someone—a parent, teacher, friend—who guided, supported, or inspired you along your life’s journey. You can salute those who have traveled with you by making a truly meaningful gift. Your donation brings our families a step closer to a treatment for FSH muscular dystrophy. Wishing you a holiday… Read More »
The FSH Society’s Guide for Schools is available online for download and print here. You can also request a hard copy by emailing your request to email@example.com. Created by a team of national experts, this booklet provides information about FSHD and the impact the disease can have on students’ experiences during the school day. The… Read More »
FSHD patients may be concerned about the effect of injections on their muscles, and others worry about exposure to chemicals in vaccines, but FSHD medical experts agree that any potential risk is greatly outweighed by the benefits. “Please encourage them to all get the flu shot,” said Kathryn Wagner, MD PhD, of the Kennedy Krieger… Read More »
UPDATED! As of December 4, we have now received donations from GivingTuesday that add up to $54,547! THANK YOU to everyone who gave on#GivingTuesday! We are amazed and humbled by your generous support. We received just over $44,000 in donations on November 27th – all of which will be matched 100%! Woo Hoo! Happy Holidays!
by MEREDITH MADDRY, Atlanta, Georgia I have heard that to have an “executive presence” in business, one should stand tall, smile, and extend your arm for a firm handshake. Yet what if people in business can no longer stand, or smile, and are losing strength in their arms―should they give up the chance at a fulfilling… Read More »