Browsing “January, 2025 - FSHD Society”

European Neuromuscular Centre Conference on Pediatric FSHD

by Ally Roets, Tucson, Arizona I was honored to attend the Pediatric FSHD European Neuromuscular Centre (ENMC) conference in Amsterdam, Netherlands, this past October. I was invited as a parent […]

Disability, Wildfire & Disaster Resources 

Fundraise YOUR way

by Kim Shanley, FSHD Society At the FSHD Society, we know that every advance is made possible by the incredible support of people like you. One way you can join […]