Bay Area Chapter Meeting

Bay Area Chapter Meeting: Connect Watch Party Join the Bay Area Chapter for a special summer chapter meeting this year in Hollister, CA. Our Bay Area Chapter Directors, Kent and Sue Drescher, will be hosting a morning watch party of the FSHD Society Patient Connect Conference that will be taking place that same morning in... Read More »

Event Series 2024 World FSHD Day

Alberta Chapter – World FSHD Day Celebration

Wild Rose Brewery - 4580 Quesnay Wood Dr. SW, Calgary, AB 4580 Quesnay Wood Dr. SW, Calgary, AB, Canada

5:30pm MT  (4:30pm PT | 7:30pm ET | 6:30pm CT) Alberta Chapter - World FSHD Day Celebration Hello Alberta Chapter Friends!! WHAT: On World FSHD Day, June 20, we are hosting a get-together with our Alberta Chapter members to celebrate the successes we have seen over the last year, and to raise awareness for the... Read More »

BC Chapter World FSHD Day Celebration Event

Rogue Kitchen and Wetbar Gastown 601 West Cordova Street, Vancouver, British Columbia, Canada

8:30pm ET | 7:30pm CT | 6:30pm MT | 5:30pm PT BC Chapter -  World FSHD Day Celebration Event Thursday, June 20th from 5:30-8:00pm at Rogue Kitchen & Wetbar Gastown, Uber Lounge, 601 W Cordova Street, Vancouver, BC V6B 1G1 This World FSHD Day we're hosting an upscale event, thanks to our sponsor Solve FSHD.... Read More »

Summer Park Party – Michigan Chapter

Tunnel Park 66 Lakeshore Ave, Holland, MI 49424 - North Picnic Pavilion Lakeshore Avenue, Holland, MI, United States

11AM - 3PM ET Summer Park Party - Michigan Chapter Please join us for an in-person social gathering on June 23rd. We are planning a summer park party from 11am - 3pm ET at Tunnel Park (66 Lakeshore Ave, Holland, MI 49424 - North Picnic Pavilion). Hot dogs, chips and water will be provided, along... Read More »

Virginia Chapter, Monthly Virtual Chapter Meeting

Zoom Virtual Meeting , United States

6:00pm ET | 5:00pm CT | 4:00pm MT | 3:00pm PT Virginia Chapter Monthly Virtual Meeting (occurs every 4th Tuesday of the month). RSVP via the below button to ensure you receive the reminder and zoom link. Please join us for this casual, conversational monthly meeting. We have no specific agenda or topic, but we... Read More »

2024 Triple Bypass Race

Saturday, July 13, 2024 The Triple Bypass The Triple Bypass stretches 118 miles, with 10,800 feet of elevation gain over 3 mountain passes: Juniper, Loveland, and Vail. George is the founder of Team FSHD Cycling. Since 2017, the team participates in endurance bicycle events to raise awareness and funds for the FSHD Society, the global... Read More »

New England Chapter In-Person Social Gathering

On the Border Mexican Grill & Cantina 1519 Silas Deane Highway, Rocky Hill, CT, United States

12-2pm ET | 11a-1pm CT | 10a-12pm MT | 9-11am PT New England Chapter In-Person Social Gathering Friday, July 19, 2024 from 12:00-2:00pm ET at On the Border (Rocky Hill) Address: 1519 Silas Deane Highway, Rocky Hill, CT 06067 Please join us for this fun, community-building event to share adventures and stories! We will enjoy... Read More »

2024 Falmouth Road Race

Sunday, August 18, 2024 2024 Falmouth Road Race The 2024 ASICS Falmouth Road Race promises to be an exciting event celebrating 52 years of running the iconic course along the sea, giving back to the community and promoting running, health and fitness! The race happens at 9:00am on Sunday, August 18. This is our second... Read More »

Event Series 2024 W&R

2024 Sacramento Walk & Roll to Cure FSHD

California State Capitol 1315 10th St, Sacramento, CA 95814 1315 10th St, Sacramento, CA, United States

12:00pm ET | 11:00am CT | 10:00am MT | 9:00am PT 2024 Sacramento Walk & Roll to Cure FSHD Saturday, September 7, 2024 Registration opens at 9:00am, the Walk starts at 10:00am California State Capitol: 1315 10th St, Sacramento, CA 95814 Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers,... Read More »

Event Series 2024 W&R

2024 Northeast Florida Walk & Roll to Cure FSHD

Jacksonville Zoo 370 Zoo Pkwy, Jacksonville, FL, United States

9:00am ET | 8:00am CT | 7:00am MT | 6:00am PT 2024 Northeast Florida Walk & Roll to Cure FSHD Saturday, September 7, 2024 Check-in begins at 8:30am, walk begins at 9:00am Jacksonville Zoo & Gardens Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join... Read More »