Director of Research and Patient Engagement
Amanda Hill, Director of Research and Patient Engagement, joined the FSHD Society in July 2022 after having been involved as a volunteer Chapter Director, writer, and fundraiser for over four years. Amanda brings deep professional expertise in biomedical research, including in clinical studies and clinical trials administration, scientific engagement and communication, and project management. Prior to joining the FSHD Society, she worked at the University of Colorado Anschutz Medical Campus for 12 years in the fields of cancer and Down syndrome as a research scientist, development manager, and program director. In 2016, Amanda’s husband was diagnosed with FSHD, spurring her personal and now professional drive to serve and empower the FSHD community and advance research towards treatments and a cure.
Amanda earned her BA in Molecular Biology from Scripps College in Claremont, CA and her MBA in Bioinnovation and Entrepreneurship from the University of Colorado Denver in Denver, CO. She lives in Highlands Ranch, CO with her husband and two dogs and enjoys exploring food and wine, running, knitting, and gardening.