Regional Director of Volunteer Leaders
Ashley Ferreira, Regional Director of Volunteer Leaders, joined the FSHD Society in April 2023 after having worked as a Community Partnerships Manager with PicnicHealth where she worked to drive patient and care partner engagement from different rare disease communities to real world data research. Ashley brings over 8 years of experience in community and patient engagement, including having lead Diversity, Equity, and Inclusion initiatives and the national Walk for PI program at the Immune Deficiency Foundation. As a caregiver to her mother and younger siblings, she is passionate about ensuring patients and caregivers have access to the resources they need to be their own best advocates, participate in research to accelerate treatments, and come together to raise awareness for their communities.
Ashley earned her BA in History and Media and Cultural Studies from the University of California, Riverside and her MA in Public Administration from California State University, Dominguez Hills. She lives in Southern California with her family and 13 cats (all of whom were rescues).