Carden Wyckoff has been an activist and ambassador for the FSHD Society since her high school years. A 2015 graduate of the University of Georgia, where she earned her B.S.A. in biological sciences, she was a leader among disability advocates who worked to improve the accessibility of university properties. She was a member of the FSHD Society’s scientific journal club where she helped update the Wikipedia entry on FSHD, and serves as a moderator of the FSHD Teens/Young Adults Facebook community. She has organized many fundraising activities for the FSHD Society, most notably the Piggyback Adventures with her siblings, Spencer and Virginia, to take on physical challenges such as the 5-mile Reebok Spartan Run obstacle course and an 82-mile hike on the Appalachian Trail. Carden was featured in a 2016 episode of American Ninja Warrior when Spencer competed in the Atlanta trials for the popular TV show. She lives in the Atlanta area and works at a Fortune 500 tech company.