Now available. Read our 2025 Impact Report

Join us for a special FSHD University town hall where the community can connect directly with Dr. Lucienne Ronco, Chief Science Officer of the FSHD Society, for an open conversation about the science of FSHD. This interactive session is your opportunity to ask questions about the biology of FSHD, the latest research developments, emerging therapeutic approaches, and what the future of treatment may look like. Whether you’re a patient, caregiver, advocate, or simply curious about the science behind the disease, this forum is designed to help make complex research more understandable and accessible. Bring your questions and join us for a thoughtful discussion about where the field stands today and where it’s headed next.
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