Parents’ Roundtable

Parents’ Roundtable

8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT

Join us for the September Parents Roundtable featuring guest speaker Amber Salzman, CEO of Epicrispr and passionate parent advocate. Amber will share her personal journey as a parent in the rare disease space and how it led her to the forefront of epigenetic editing technology. She’ll also speak about Epicrispr’s approach and innovations in epigenetic editing.

Join us for our monthly Parents’ Roundtable on the 3rd Tuesday of each month, where parents meet to exchange ideas, offer support, and gain insight to keep our children with FSHD as healthy and mobile as possible, and to advocate for more research and clinical trials for children. We will have plenty of time for parents to exchange ideas and ask/answer questions from other parents.

We’d love your thoughts and participation. Please join us and bring your ideas, questions, answers, and tips and tricks.

Once you join the group by submitting your RSVP for a meeting, you will not need to register for each month’s meeting. You will automatically receive monthly reminders and call-in/Zoom information. You may change your group membership at any time by emailing us at info@fshdsociety.org.

Ally Roets & Sam Ray
Parents’ Roundtable Directors

Learn more about the Parents’ Roundtable