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Falling backwards and what to do about it

From the Women on Wellness group At our May meeting, one member shared a great question: Has anyone had experience with falling backwards due to their lordosis? She didn’t feel […]

Stay warm and safe

Changing mindset about assistive technologies

Emma Weatherley, executive director of Australia’s FSHD Global Research Foundation, has a refreshingly positive outlook on assistive devices. Instead of seeing the need to use a brace or wheelchair as […]

A delicate matter for female travelers with FSHD

Tips and tricks for managing urinary incontinence Editor’s note: This is a summary of the May Women on Wellness Zoom meeting. The members met to discuss their concerns and solutions […]

Life hacks: Braces for shoulder stabilization

by Peter Blackburn, South Africa FSHD group I have two of the Ottobock 5055 Acro Comfort braces. These are joined at the back with velcro tape (my personal touch to […]