Written by Beth Johnston, Development Officer at the FSH Society When my husband, Jeff, was diagnosed with FSHD in 2001 (after years of wondering what was going on with his […]
About 12 members of the Sacramento FSH Society Support Group met at Mimi’s Café on February 8th. We had a new attendee who moved from Monterey and had never met […]
Team FSHD Cycling, formed by George Pollock Jr., will participate in the Open Division as an 8 person team in this year’s Race Across America, one of the most respected and longest running ultra-endurance […]
The FSH Society’s 2016 Patient Connect conference was held on Friday, November 11, (noon to 5:00PM) and Saturday, November 12, 2016 (9:00-5:00 PM) at the Westin Copley Place Hotel in Boston, Massachusetts. […]
Join us on Tuesday, November 29, 2016 as we participate in the fifth annual #GivingTuesday! Entering its fifth year, #GivingTuesday is a global day of giving fueled by social media […]
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