World FSHD Day, a global movement to raise awareness of FSHD, occurs on June 20. From orange slice selfies and proclamations to lit up buildings, World FSHD Day brings together […]
by Mark Stone It is with deep sadness that I share the news that Howard Chabner, our Board Vice Chair and a longtime supporter of the FSHD Society, has passed […]
كتبه هاورد تشابنر، نائب رئيس مجلس الإدارة، وشاركه نيابة عن مجلس إدارة جمعية FSHD بأكمله يشعر مجلس إدارة جمعية FSHD بالحزن العميق [...].
While his family and our community morns the loss, I want to honor the life of Dan Perez, a man whose vision, determination, and heart changed the course of FSHD […]
by Beth Johnston Earlier this month, we added the 4th Canadian Chapter to the roster of our growing FSHD Communities! The Quebec Chapter is led by father/son duo Sylvain and […]
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