مؤتمر الويب زووم

Thursday, July 16th at 1:00 pm ET Presenter: Marisa Spain, Disability Rights Michigan Obtaining, maintaining, and advancing in employment can be a complex conversation when also living with FSHD. You might need expensive equipment like a wheelchair or accessible vehicle to be able to maintain access to work, or additional training or schooling to transition […]

Wednesday, July 29th at 5:00 pm ET Presenter: Emma Weatherley, Project Mercury Chair Join Project Mercury Chair Emma Weatherly as we reflect on three remarkable years of global collaboration and look ahead to an even more critical phase. Project Mercury began with a simple but urgent realization: promising FSHD therapies were advancing faster than the world's […]

Thursday, September 17 at 1:00 pm ET Presenter: Natalie Katz, MD, PhD & Mai Elmallah, MD, Duke University Respiratory challenges in FSHD often develop gradually and can be missed, especially in children. Join Dr. Natalie Katz, MD, PhD, and pediatric pulmonologist Dr. Mai ElMallah, who together run a specialized Pediatric Neuromuscular clinic and conduct research […]