Welcome to the Utah Chapter

The Utah chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

نقدم الدعم ونشارك الموارد المحلية ونطلعك على أحدث الأبحاث والرعاية. سواء تم تشخيص حالتك حديثاً أو كنت مصاباً بهذا المرض لسنوات، فنحن هنا لدعمك في كل خطوة تخطوها في طريقك.

انقر على الزر أدناه لمعرفة كيف يمكننا دعمك في رحلتك مع الحثل العضلي الوجهي الكتفي العضدي (FSHD).

انضم إلى فرعك المحلي

تعرّف على الفريق

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  أليسون كالدر

  Allison is proud to be part of the strong FSHD community in Utah. FSHD became a part of her life in 2013 when her husband, Curtis, was diagnosed at age 29. As a nurse, she immediately started learning about the disease and how it would affect their family. The FSHD Society has been an invaluable resource, and being part of this community has supported her family in many ways.

  Allison and Curtis live in Salt Lake City with their four children, where they founded Anson Calder shortly after Curtis’s diagnosis. The business creates high-quality leather goods and helps fund the mission of the FSHD Society, making a positive impact on the community.

  Contact Allison directly أو قم بزيارة Utah Facebook page.