Meet Steven Blier, Sarah Geissler, and Chris Stenmon, three remarkable individuals with FSH muscular dystrophy who spoke about their dreams and personal challenges at the 2016 CureFSHD Gala. Interviewed by WBUR Morning Edition host Bob Oakes.
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I remain inspired by the entire FSHD community, but especially by those brave and courageous individuals with FSHD who are getting the word out about the disease.