المناصرة وجمع التبرعات
تمكين التغيير من خلال البحث والدعم والمناصرة الدؤوبة لعائلات مرضى نقص المناعة المكتسب (FSHD).
This page contains all the ACF Modules so you can see them used, in action.
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تحكّم في رحلتك مع مرض نقص المناعة المكتسب (FSHD) وساعد في تطوير علاجات محتملة بشكل أسرع.
تمكين التغيير من خلال البحث والدعم والمناصرة الدؤوبة لعائلات مرضى نقص المناعة المكتسب (FSHD).
Providing patients with knowledge, support, community, and tools for their unique journey.
تعزيز الأمل من خلال إجراء أبحاث رائدة في مجال الكشف المبكر عن سرطان الثدي والجلدية وتجارب سريرية مبتكرة في جميع أنحاء العالم.
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Lorem ipsum dolor sit amet consectetur. Non iaculis nulla nullam facilisis risus quisque pretium fames risus. Amet libero amet at volutpat dis et risus mattis. Ut euismod aliquam quisque amet ac cursus pharetra sed risus. At libero egestas ut ipsum nisi vitae massa eu. Gravida consectetur lacinia elementum scelerisque quisque ultricies mattis. Nulla aenean pellentesque nisl varius.
أصبح عمل جمعية FSHD Society الحيوي في دعم مرضى FSHD والعائلات والباحثين والمدافعين عن المرض ممكناً من خلال المساهمات السخية من الشركاء من الشركات الذين يكرسون أنفسهم أيضاً لرسالتنا.
If you would like to learn more about partnering with us, please contact us.
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CONNECT 2024 will be hosted on June 15-16 in Denver, Colorado. CONNECT brings together world leaders in FSHD research, patient care, advocacy, education, and support. Held every two years, FSHD […]
It’s our annual Thanksgiving Special and this year we’re featuring musicians living with FSHD. Tune in for interviews, instrumentals, and more.
8:30PM ET | 7:30PM CT | 6:30PM MT | 5:30PM PT Saturday, April 13, 2024, 6:30pm MT at the Boise State University Special Events Center Raise money to fund research […]
2024 International Walk & Roll to Cure FSHD Register to “walk or roll” today! Invite your family, friends, club members, neighbors, co-workers, classmates or congregation to join you. Everyone who […]
Sunday, August 18, 2024 2025 Falmouth Road Race The 2025 ASICS Falmouth Road Race promises to be an exciting event celebrating 53 years of running the iconic course along the […]
FSHD Europe will organize, in collaboration with the FSHD Society, the first FSHD Connect Europe meeting on June 13th – June 15th, 2025, in Amsterdam, The Netherlands. This is a […]
Save the date! The FSHD Society’s annual FSHD International Research Congress is the premier global conference exclusively focused on facioscapulohumeral muscular dystrophy (FSHD) research. With the recent advances in FSHD […]
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Ask the FSHD Navigators and get connected with a real person. We are here to journey alongside you and give you the resources you need to live your best life with FSHD!
فقط راسلنا على Navigator@FSHDsociety.orgاتصل بـ (781) 301-6060أو أرسل سؤالاً.
We want to help you connect with providers and resources who are informed about and experienced with FSHD.
تمكين التغيير من خلال البحث والدعم والمناصرة الدؤوبة لعائلات مرضى نقص المناعة المكتسب (FSHD).
Providing patients with knowledge, support, community, and tools for their unique journey.
تعزيز الأمل من خلال إجراء أبحاث رائدة في مجال الكشف المبكر عن سرطان الثدي والجلدية وتجارب سريرية مبتكرة في جميع أنحاء العالم.
by Amanda Hill, Research & Care Programs Officer at the FSHD Society, and Ally Roets, Parent, Caregiver, CureFSHD for All Advocate and Parents’ Roundtable Leader Many of us in […]
التواصل مع مجتمعنا من خلال أحدث المعلومات عن الأبحاث وصانعي الأخبار والإنجازات في مجال مرض نقص المناعة المكتسبة.
انضم إلينا في الفعاليات التفاعلية التي تعزز المجتمع وترفع الوعي وتدعم عائلات ومبادرات FSHD.
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by Amanda Hill, Research & Care Programs Officer at the FSHD Society, and Ally Roets, Parent, Caregiver, CureFSHD for All Advocate and Parents’ Roundtable Leader Many of us in […]
College is possible. Preparation is necessary. by Wade C., FSHD Navigator Let’s start here: college is possible for students with FSHD. Yes, there might be some careers that aren’t realistic […]
May is National Mental Health Awareness Month, a time to recognize that well-being includes both physical and emotional health. For individuals living with FSHD, mental health can be an important […]
Living with FSHD often means learning to build a tool kit of strategies that support both body and mind. For many people, yoga, meditation, and breathwork can be meaningful additions […]
The FSHD Society is deeply grateful to Kent and Sue Drescher for their years of dedicated service as leaders of the Bay Area Chapter. On Sunday, May 22, they officially […]
The FSHD Industry Collaborative is a first-of-its-kind, multi-stakeholder initiative designed to improve how FSHD clinical trials are designed, executed, and evaluated RANDOLPH, Mass. and VANCOUVER, BC, April 8, 2026 /PRNewswire/ […]
The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy.
تسريع وتيرة الأبحاث وتقديم الدعم وتصور عالم خالٍ من مرض نقص المناعة المكتسب.
تدعم شبكتنا مجتمع FSHD بالتعاطف والتعاون.
لدى الجمعية أهداف جريئة ونحن نحرز تقدماً كبيراً.
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