إحياءً لذكرى دان بيريز المؤسس المشارك لجمعية FSHD Society والقوة الدافعة في مجال أبحاث ومناصرة مرض FSHD.
كتبه هاورد تشابنر، نائب رئيس مجلس الإدارة، وشاركه نيابة عن مجلس إدارة جمعية FSHD بأكمله يشعر مجلس إدارة جمعية FSHD بالحزن العميق [...].
While his family and our community morns the loss, I want to honor the life of Dan Perez, a man whose vision, determination, and heart changed the course of FSHD […]
by Beth Johnston Earlier this month, we added the 4th Canadian Chapter to the roster of our growing FSHD Communities! The Quebec Chapter is led by father/son duo Sylvain and […]
By June Kinoshita As I step into a new chapter of my life, I find myself reflecting on the extraordinary 13-year journey I’ve had with the FSHD Society. What began […]
By June Kinoshita, FSHD Society It is with deep sadness and gratitude that the FSHD Society honors the memory of beloved community member and long-time volunteer, Ann Biggs-Williams, who passed away […]
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