التصفح “Early Onset or Infatile - FSHD Society”

What a New Study on FSHD and Mortality Means for Our Community

What a New Study on FSHD and Mortality Means for Our Community

تم النشر على مايو 18th, 20265/18/26

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Expanded Access Crash Course with Ally Roets and Dr. Michelle Mellion, FSHD Straight Talk

Expanded Access Crash Course with Ally Roets and Dr. Michelle Mellion, FSHD Straight Talk

تم النشر على مارس 30th, 20263/30/26

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Early Onset Insight: Findings from Dr. Erasmus’ 5yr Early Onset Study – Oct 2025 Parents’ Roundtable

Early Onset Insight: Findings from Dr. Erasmus’ 5yr Early Onset Study – Oct 2025 Parents’ Roundtable

تم النشر على مارس 30th, 20263/30/26

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Whole Body MRI Measures in Pediatric FSHD Patients – November 2025 Parents’ Roundtable

Whole Body MRI Measures in Pediatric FSHD Patients – November 2025 Parents’ Roundtable

تم النشر على مارس 30th, 20263/30/26

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Pediatric FSHD – Euro-NMD Webinar Series, Episode 3

Pediatric FSHD – Euro-NMD Webinar Series, Episode 3

تم النشر على يونيو 18th, 20256/18/25

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