Welcome to the Alberta Chapter

FSHD Canada Foundation has partnered with the FSHD Society to support and grow the FSHD Communities across Canada with the shared goal to deliver treatments and a cure for FSH Muscular Dystrophy.

The Alberta chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

نقدم الدعم ونشارك الموارد المحلية ونطلعك على أحدث الأبحاث والرعاية. سواء تم تشخيص حالتك حديثاً أو كنت مصاباً بهذا المرض لسنوات، فنحن هنا لدعمك في كل خطوة تخطوها في طريقك.

انضم إلى فرعك المحلي وتعرّف كيف يمكننا دعمك في رحلتك مع مرض نقص المناعة المكتسب.

تعرّف على الفريق

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  Karen Camarta

  Karen Camarta is excited to be co-directing the Alberta Chapter with her sister Jennie. With FSHD in her family, Karen started noticing signs of the disease in her twenties, though she has been fortunate to experience only mild symptoms so far. She is passionate about connecting with others affected by FSHD and working to spread understanding within her local community.

  Karen lives in Calgary with her amazing husband and daughter. She loves to travel, explore nature, and discover new cultures around the world. Karen is proud to support the Alberta Chapter and the FSHD community as they continue to grow and strengthen their connections.

  Contact Karen & Jennie directly أو قم بزيارة Alberta Facebook page.

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  Jennie Camarta

  Jennie Camarta is proud to co-direct the Alberta Chapter alongside her sister Karen. Diagnosed with FSHD in her early twenties, Jennie has always known she had the condition. Despite the challenges of FSHD, she leads an active lifestyle, enjoying time in the Rocky Mountains, traveling, and spending time with her nieces and nephews.

  Jennie and her husband, Nick, have been married for over 15 years and live in Calgary. When she’s not planning her next adventure, Jennie works as a Registered Nurse caring for veterans. She is dedicated to supporting her local FSHD community and looks forward to building stronger connections with others affected by the disease.

  Contact Karen & Jennie directly أو قم بزيارة Alberta Facebook page.