Welcome to the British Columbia Chapter

The British Columbia chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

نقدم الدعم ونشارك الموارد المحلية ونطلعك على أحدث الأبحاث والرعاية. سواء تم تشخيص حالتك حديثاً أو كنت مصاباً بهذا المرض لسنوات، فنحن هنا لدعمك في كل خطوة تخطوها في طريقك.

انضم إلى فرعك المحلي وتعرّف كيف يمكننا دعمك في رحلتك مع مرض نقص المناعة المكتسب.

تعرّف على الفريق

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  Cheryl Hooge

  Cheryl is proud to co-direct the FSHD BC Chapter. Her daughter was diagnosed with a spontaneous case of FSHD at the age of 16, and this experience sparked Cheryl’s dedication to learning as much as possible about the disease. She stays informed by reading literature and connecting with others affected by FSHD to share insights and support.

  Cheryl believes the FSHD community is an invaluable resource for patients, families, and caregivers, and her passion for building connections led her to help strengthen the local FSHD community in British Columbia. As treatments are being developed, Cheryl is focused on ensuring access to clinical trial sites, hoping to bring one to the area in the future. She is committed to supporting those affected by FSHD and continuing to grow the community.

  Contact Cheryl directly أو قم بزيارة British Columbia Facebook page.