Welcome to the Colorado/New Mexico Chapter

The Colorado/New Mexico chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

نقدم الدعم ونشارك الموارد المحلية ونطلعك على أحدث الأبحاث والرعاية. سواء تم تشخيص حالتك حديثاً أو كنت مصاباً بهذا المرض لسنوات، فنحن هنا لدعمك في كل خطوة تخطوها في طريقك.

انضم إلى فرعك المحلي وتعرّف كيف يمكننا دعمك في رحلتك مع مرض نقص المناعة المكتسب.

تعرّف على الفريق

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  Kurt Spiegel

  Kurt was diagnosed with FSHD at the age of 53 after experiencing muscle weakness and atrophy that led to a search for answers. As someone who had lived an active lifestyle as an endurance athlete, the progression of the disease deeply affected all aspects of his physical activities.

  Now unable to work, Kurt is focused on partnering with the FSHD Society to provide education, share insights, and offer support to FSHD patients and caregivers. His goal is to help others live the best life possible despite the challenges of FSHD.

  Contact Kurt directly أو قم بزيارة Colorado/New Mexico Facebook page.