Welcome to the Greater Philadelphia Chapter

The Greater Philadelphia chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

نقدم الدعم ونشارك الموارد المحلية ونطلعك على أحدث الأبحاث والرعاية. سواء تم تشخيص حالتك حديثاً أو كنت مصاباً بهذا المرض لسنوات، فنحن هنا لدعمك في كل خطوة تخطوها في طريقك.

انضم إلى فرعك المحلي وتعرّف كيف يمكننا دعمك في رحلتك مع مرض نقص المناعة المكتسب.

تعرّف على الفريق

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  Bill MacLean

  Bill has been a member of the FSHD Society for over a decade and understands how valuable it is to have a local community that shares experiences, offers strategies to manage FSHD, and supports research to improve the lives of those affected. Facing this disease alone can be challenging, but being part of a community that understands makes a world of difference.

  Bill’s wife has been a constant source of support throughout his journey with FSHD. Together, they’ve faced many challenges, and her encouragement and belief in the importance of the FSHD Society have been vital to him. With her support, Bill has been able to stay connected to the community and continue his efforts to raise awareness and provide support for others affected by FSHD.

  Contact Bill directly أو قم بزيارة Greater Philadelphia Facebook page.