Iowa Chapter

Welcome to the Iowa Chapter

The Iowa Chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

نقدم الدعم ونشارك الموارد المحلية ونطلعك على أحدث الأبحاث والرعاية. سواء تم تشخيص حالتك حديثاً أو كنت مصاباً بهذا المرض لسنوات، فنحن هنا لدعمك في كل خطوة تخطوها في طريقك.

انضم إلى فرعك المحلي وتعرّف كيف يمكننا دعمك في رحلتك مع مرض نقص المناعة المكتسب.

تعرّف على الفريق

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  Art Abrams

  Art Abrams is the Chapter Director of the Iowa Chapter of the FSHD Society. His later-in-life FSHD diagnosis helped explain many challenges he had faced over the years. Like many people living with a rare disease, he initially felt isolated. That feeling quickly faded once he connected with the FSHD Society and began meeting others who shared similar experiences.

  Inspired by that sense of community, Art founded the FSHD Society Iowa Chapter. His vision for the Chapter is simple and heartfelt: a welcoming group of FSHD patients, caregivers, and significant others who support one another, share experiences, and work together to navigate life with FSHD.
  The group meets regularly, but it’s truly a 24/7 circle of friends. Always there to listen, to help, and to remind one another that no one is facing this alone.