Welcome to the Michigan Chapter

The Michigan chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

نقدم الدعم ونشارك الموارد المحلية ونطلعك على أحدث الأبحاث والرعاية. سواء تم تشخيص حالتك حديثاً أو كنت مصاباً بهذا المرض لسنوات، فنحن هنا لدعمك في كل خطوة تخطوها في طريقك.

انضم إلى فرعك المحلي وتعرّف كيف يمكننا دعمك في رحلتك مع مرض نقص المناعة المكتسب.

تعرّف على الفريق

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  Andrea (Dre) Vanbeek & Alissa Lowman

  Andrea (Dre) Vanbeek and her sister, Alissa Lowman, are the Co-Chapter Directors for the Michigan chapter. In September 2021, Dre’s son, Crew, was diagnosed with FSHD Type I at the age of 12. This diagnosis led Dre and Alissa to dive into research and find ways to support Crew and others facing the same challenges. Their goal is to connect families with resources, information, and a community of support, offering hope in a time of uncertainty.

  Dre lives in West Michigan, where she works as a registered nurse and is a proud mom of four children, including Crew. Alissa lives in the Detroit area, where she recently retired from teaching and has three children. Both Dre and Alissa are passionate about helping families navigate the journey of FSHD and raising awareness in their community.

  Contact Dre & Alissa directly أو قم بزيارة Michigan Facebook page.