Minnesota Chapter

الاتصال. الدعم. إعلام. عزز.

Welcome to the Minnesota Chapter

The Minnesota chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

نقدم الدعم ونشارك الموارد المحلية ونطلعك على أحدث الأبحاث والرعاية. سواء تم تشخيص حالتك حديثاً أو كنت مصاباً بهذا المرض لسنوات، فنحن هنا لدعمك في كل خطوة تخطوها في طريقك.

Click the button below to learn how we can support you on your FSHD journey.

Join Your Local Chapter

تعرّف على الفريق

  • Jacob Wise

    Jacob Wise

    Jacob Wise lives in Edina, MN, with his wife and three children. He was diagnosed with FSHD in 2001 at the age of 23. As his condition progressed, Jacob felt a strong desire to give back to the FSHD community. When the opportunity arose to help create a Minnesota Chapter, he was eager to contribute and use his experience to support others.

    Jacob is excited to connect with others affected by FSHD, share resources, and build a local support network. He is dedicated to advancing treatments for FSHD by fostering a strong, supportive community.

    Contact Jacob directly أو قم بزيارة Minnesota Facebook page.

     

تطوع مع الفرع

While Jacob is powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.

تواصل مع بيث جونستون، رئيس قسم القيادة التطوعية لتتعلم كيف يمكنك إحداث تأثير والمشاركة.

Upcoming Minnesota Chapter Events

الفعاليات

اليوم

  • Eastern & Central Multi-Chapter Meeting

    Featured 2026 اجتماعات الفصل 2026
    اجتماع زووم الافتراضي , ، الولايات المتحدة الأمريكية

    October 14, 2026 | 6pm ET/5pm CT The Understanding and Practice of Emotional Well-Being We will consider the meaning of well-being, how we define it personally, and ways we can […]