Welcome to the NE Florida Chapter

The Northeast Florida chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

نقدم الدعم ونشارك الموارد المحلية ونطلعك على أحدث الأبحاث والرعاية. سواء تم تشخيص حالتك حديثاً أو كنت مصاباً بهذا المرض لسنوات، فنحن هنا لدعمك في كل خطوة تخطوها في طريقك.

Click the button below to learn how we can support you on your FSHD journey.

Join Your Local Chapter

تعرّف على الفريق

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  Christi Thissen

  Christi Thissen is proud to be part of the local Northeast Florida FSHD chapter and is passionate about bringing people together. Diagnosed with FSHD in 1998 at the age of 19, she understands the challenges that come with the condition. Christi owns an IT Managed Services company in Jacksonville, which she runs with her big brother, who also has FSHD.

  Through the chapter, Christi helps create a space where people affected by FSHD can share stories, exchange resources, and support one another. She believes that building a strong local community helps people navigate their journey with FSHD and allows them to connect with others who are facing similar challenges.

  Contact Christi directly أو قم بزيارة Northeast Florida Facebook page.