North Carolina Chapter

الاتصال. الدعم. إعلام. عزز.

Welcome to the North Carolina Chapter

The North Carolina chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

نقدم الدعم ونشارك الموارد المحلية ونطلعك على أحدث الأبحاث والرعاية. سواء تم تشخيص حالتك حديثاً أو كنت مصاباً بهذا المرض لسنوات، فنحن هنا لدعمك في كل خطوة تخطوها في طريقك.

انضم إلى فرعك المحلي وتعرّف كيف يمكننا دعمك في رحلتك مع مرض نقص المناعة المكتسب.

تعرّف على الفريق

  • Michael King

    Michael King

    Michael King is from Charlotte, North Carolina, and was diagnosed with FSHD in early 2024. After his diagnosis, he reached out to the FSHD Society for support and is grateful for their guidance in navigating the disease. Connecting with others in the FSHD community has become an important part of his journey and has helped him cope with the challenges of the condition.

    As Chapter Director, Michael is eager to support and make a positive impact on other FSHD patients, their families, and friends. He feels fortunate for the opportunity to serve in this role and looks forward to building connections within the FSHD community.

    Contact Michael directly أو قم بزيارة North Carolina Facebook page.

تطوع مع الفرع

While Michael is powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.

تواصل مع بيث جونستون، رئيس قسم القيادة التطوعية لتتعلم كيف يمكنك إحداث تأثير والمشاركة.

Upcoming North Carolina Chapter Events