South Carolina Chapter

الاتصال. الدعم. إعلام. عزز.

Welcome to the South Carolina Chapter

The South Carolina chapter of the FSHD Society is a local group of people, families, and advocates working together to support those living with facioscapulohumeral muscular dystrophy (FSHD). Whether you join us in person or virtually, our chapter offers a place to connect with others who understand what you’re going through.

نقدم الدعم ونشارك الموارد المحلية ونطلعك على أحدث الأبحاث والرعاية. سواء تم تشخيص حالتك حديثاً أو كنت مصاباً بهذا المرض لسنوات، فنحن هنا لدعمك في كل خطوة تخطوها في طريقك.

انضم إلى فرعك المحلي وتعرّف كيف يمكننا دعمك في رحلتك مع مرض نقص المناعة المكتسب.

تعرّف على الفريق

  • Sam Miller

    Sam Miller

    Sam lives in Travelers Rest, South Carolina, and was diagnosed with FSHD in February 2020. His first sign was the wasting of his bicep, which was difficult for him to handle. Though it hasn’t been easy, Sam has stayed positive and focused on moving forward.

    With the support of his family and the FSHD community, Sam faces each day with strength and hope. He often says, “I am not alone,” which helps him stay strong as he tackles the challenges of living with FSHD. Sam understands the importance of staying connected with others and keeping a positive outlook.

    Contact Sam directly أو قم بزيارة South Carolina Facebook page.

تطوع مع الفرع

While Sam is powering the path forward, we’re always looking for passionate individuals to help with planning events, spreading the word, and working on other projects. Your involvement will make a big difference in growing the chapter and supporting those affected by FSHD.

تواصل مع بيث جونستون، رئيس قسم القيادة التطوعية لتتعلم كيف يمكنك إحداث تأثير والمشاركة.

Upcoming South Carolina Chapter Events