The FSHD Society is powering the path forward, advancing research and clinical care for facioscapulohumeral muscular dystrophy. Join us in this crucial mission to improve the lives of individuals with FSHD and work towards a world without FSHD.
Whether you want to stay informed about the latest FSHD therapies in development, learn about our nationwide network accelerating FSHD clinical trials, understand the clinical trials process and how to participate, find ongoing FSHD clinical trials and research studies, or get the latest news on FSHD research breakthroughs, the FSHD Society is your hub for the latest news and information.
We’re happy to share your study recruitment materials with our community. Please use the below form to submit all relevant details and desired timeline.
The FSHD Society is at the forefront of research leading to effective therapies. Discover how we’re fast-tracking FSHD drug development and patient access to treatments through programs like the International Research Congress, FSHD Navigator, BetterLife FSHD, and Project Mercury.
The FSHD Society is at the forefront of research leading to effective therapies. Discover how we’re fast-tracking FSHD drug development and patient access to treatments through programs like the International Research Congress, FSHD Navigator, BetterLife FSHD, and Project Mercury.
The FSHD Society has vital resources tailored to clinicians who want a better understanding of FSHD. Access the latest FSHD care recommendations with our Care Guidelines for Clinicians. Enhance your expertise in FSHD care and management through our FSHD Master Class. Learn about genetic testing for FSHD diagnosis with our Genetic Testing for Clinicians.
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