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By Rick Whitehead This past June, I had the opportunity to attend the inaugural FSHD Connect Europe meeting. Here are my takeaways from the conference that I would like to […]
By Selina Lai, Pacific Northwest Chapter Director Our attendance at the Denver Patient Connect Conference last June inspired us to plan a summer trip to Europe to participate in the […]
By Ria de Haas, FSHD Europe FSHD Europe proudly hosted the first edition of FSHD Connect Europe, an event that marked a significant milestone for the European FSHD community. The […]
By Jenny Gast, Director of Chapter Programs As the FSHD Society continues to grow, we’re reimagining how we connect our community across chapters. On June 25, we piloted a new […]
On June 24, 2025, Avidity Biosciences, alongside Dr. Nicholas Johnson, presented the much‑anticipated topline results from the FORTITUDE Phase 1/2 study of del‑brax (also known as delpacibart braxlosiran), during an FSHD University […]
