Boston, MA / February 11, 2013 At the age of 28, Kevin Kirby was diagnosed with a disease that most people have never heard of. Called Facioscapulohumeral Muscular Dystrophy, or FSHD, the disorder is named for the body areas that are typically affected: the face (facio-), shoulder blades (scapula-) and upper arms (humeral). The disease… Read More »
The Centers for Disease Control Spotlights FSH Muscular Dystrophy
The FSH Society and the FSHD Canada Foundation announce first joint effort to fund FSHD research using human induced pluripotent stem cell (hiPSC) technology that could lead to new insight into the FSHD disease process while providing critically important tools for developing new therapies
FSH Society Scientific Advisory Board (SAB) recommends and Board of Directors funds $393,489 for five (5) new research awards for the August 2012 grant cycle! PDF
The 2012 End-of-year Challenge of $225,000 from major donors has been exceeded! You have helped the FSH Society have the most successful fundraising year ever, with your personal gifts, your friends and family’s gifts, together contributing to over $1,422,000 for 2012. Think of the research that can be funded…. Thank you. Thank you.