FSH Society executive director June Kinoshita will be attending the 2016 FSH Friends Research Summit in Portland, Oregon, this February 29-March 1, timed to mark Rare Disease Day. The summit… Read More »
FSH Society attending FSH Friends research summit
Thank you for helping us exceed our year-end challenge!
At the end of 2015, our Board of Directors pledged gifts totaling $384,805 and challenged FSH Society members and friends to match it. We’re delighted to announce that not only… Read More »
Whole-Body MRI Yields New Insights
By June Kinoshita (from FSH Watch Fall 2015 issue) Click on image below to view full size. In 2013-2014, the FSH Society funded a study led by Doris Leung, MD,… Read More »
Ask the Physical Therapist: Can braces or taping assist weak muscles?
The following is from the transcript to a session conducted on Friday, November 13, 2015, over the FSH Society’s Facebook page with Julie Hershberg PT, DPT, NCS. Hershberg is a physical… Read More »
Music Therapy and Facioscapulohumeral muscular dystrophy
The Los Angeles FSHD Connects group will be meeting on Saturday, February 13.FSH muscular dystrophy can weaken muscles involved with breathing, so we invited Chris Anderson, a music therapist who uses… Read More »