FSH Society Board member Amy Bekier is organizing an FSH Society booth at the 2016 Los Angeles Abilities Expo (February 5-7) on the theme of artists living with FSHD. Creative artists… Read More »
Los Angeles Abilities Expo, Calling All Artists!
Anson Calder supports FSH muscular dystrophy research
Give the gift that gives back! Anson Calder’s super slim, elegant wallet is the perfect present to put under the tree this year. “Your search for the perfect wallet is… Read More »
Hot off the press! FSH Watch Fall 2015 issue
This October we had our first-ever gala in Los Angeles, an incredibly fun Halloween costume ball aptly named “A Ghostly Gala to Vanish FSHD.” There, June spoke of the importance… Read More »
What FSH Muscular Dystrophy Has Given Me
Learn, let go, and find beauty in new places By Meredith L. Huml, Raleigh, North Carolina As a muscular dystrophy sufferer—I was diagnosed with FSHD at Duke University’s Muscular Dystrophy… Read More »
Update on Early-Onset FSH Muscular Dystrophy Study
Insights on symptoms, biology, and quality of life By Yi-Wen Chen, PhD and Jean Mah, MD While most people with FSHD develop muscle weakness during late teen years or adulthood,… Read More »