The 2012 End-of-year Challenge of $225,000 from major donors has been exceeded! You have helped the FSH Society have the most successful fundraising year ever, with your personal gifts, your friends and family’s gifts, together contributing to over $1,422,000 for 2012. Think of the research that can be funded…. Thank you. Thank you.
Boston, MA / January 24, 2013 Facioscapulohumeral muscular dystrophy (FSHD) is a disease most people have never heard of, even though it is one of the most common forms of muscular dystrophy. Having a name that is daunting to pronounce and spell doesn’t help. But being an “invisible” disease has its up side. Frustrated by… Read More »
Fueled by funding from the FSH Society, an international research team has discovered the genes that cause facioscapulohumeral muscular dystrophy (FSHD), a devastating muscle-wasting disease that affects 500,000 people around the world. The FSH Society answers questions about what these findings mean for patients.
GlaxoSmithKline PLC (GSK) announces partnership to develop therapeutics to treat FSHD. The goal of the new agreement is to develop a small-molecule-based medicine to potentially reverse FSHD
Year-End Challenge to Fund the Treatment for FSHD! A group of long-time supporters have come forward to challenge the Society’s members and friends to make gifts to Fund the Treatment for FSHD. These generous donors will match your gift dollar for dollar, up to a total of $255,000, if you make your gift by December… Read More »