Ultragenyx Pharmaceutical Inc., a biopharmaceutical company focused on the development of novel products for rare and ultra-rare diseases, and Saint Louis University’s (SLU) Center for World Health and Medicine, announced that they… Read More »
Ultragenyx Pharmaceutical to sponsor FSHD drug development project
FSH Society elects new Board members
The FSH Society Board of Directors has elected two new members at its February 2016 meeting. The newly elected directors, George Pollock Jr and Neil Solomon, MD, bring extensive experience… Read More »
Staples Grant to Support Scholarship
Did you hear? The FSH Society has been awarded a grant by Staples Foundation. We plan to use the donation to support public awareness and youth education about FSHD, such… Read More »
A portrait of Pierre, who lives with FSH muscular dystrophy
Check out this wonderful short documentary about Pierre, a 40-year-old who has shared this intimate view of what it is like to live with facioscapulohumeral muscular dystrophy.
In Celebration of 25 Years: Thank You
This year, we are proud to say that the FSH Society is celebrating its 25th anniversary. For a quarter century, we have had the honor and the privilege of helping… Read More »