What the FSHD Society can and must do for the community by June Kinoshita, FSHD Society The FSHD Society has been tightly focused on understanding FSHD and speeding up the… Read More »
A holistic approach
Orphan drug designation for Epic Bio’s FSHD candidate
Read the full news release here. SOUTH SAN FRANCISCO, Calif., Nov. 16, 2023 (GLOBE NEWSWIRE) — Epic Bio, a biotechnology company developing therapies to modulate gene expression using compact, non-cutting dCas… Read More »
The 2023 Walk & Roll to Cure FSHD
Breaking the million dollar mark for the first time by Beth Johnston and Erin Saxon, FSHD Society On a sparkling morning this past September, against a majestic view of the… Read More »
When I finally discovered the benefits of support groups
Sharing with fellow MD patients is a chance to learn and impart what we know by Robin Stemple. Reprinted with permission from Muscular Dystrophy News Today. I’ll admit that I… Read More »
Holistic approaches to fitness and wellbeing
When we invited people in the community to offer “exercise hacks,” one of those who stepped forward was Rita Lynn. Following her FSHD diagnosis, she went through a period of… Read More »