Stumble control technology reduces falls by 80 percent by Kathy Senecal, New England chapter co-leader It can be difficult to find the right adaptive equipment we need to help us… Read More »
Adventures with a robotic leg brace
Kate Therapeutics is pursuing FSHD treatment
The company’s MyoAAV promises a less toxic way to deliver gene therapies by June Kinoshita, Senior Director of Research and Education Kate Therapeutics, Inc. (KateTx), a San Diego-based biopharma company,… Read More »
Unleashing the Power of Collaboration: Achieving More for FSHD Together
by Ken Kahtava, FSHD Society This blog post was originally published here on the Project Mercury website. On 11 May in Leiden, NL, the Project Mercury global task force members met for… Read More »
Managing Fatigue
Our May Women on Wellness group discussion focused on a topic that is always a big concern, fatigue. This is a group of women who meet monthly on Zoom and… Read More »
Raising our voice to raise our seats!
Medicare will now cover elevating power wheelchair seats by Ranae Beeker, RN Margaret Mead opined: “Never doubt that a small group of thoughtful, committed individuals can change the world. In fact, it’s… Read More »