Marseille meeting convenes delegates from 11 nations BY SHEILA HAWKINS, TRUSTEE, MUSCULAR DYSTROPHY UK FSH muscular dystrophy affects people of every nation and ethnicity, and the effort to develop treatments will undoubtedly require the participation of patients from multiple countries. With international clinical trials already under way and more on the horizon, it was more… Read More »
World FSHD Day was a HUGE Success! Thank you to all of you who hosted events and participated! Here are a few highlights: The Tampa Chapter and George Pollock Raced Across America with Team FSHD Skyland Trail The Atlanta Chapter lit up the King & Queen Buildings The New England Chapter lit up the Zakim Bridge The Arizona and Utah Chapters had… Read More »
TikTok, the video-sharing app formerly known as musical.ly, is the world’s fastest growing social networking platform. This year, TikTok is participating in World FSHD Day on June 20th. The relationship was cultivated by our friends at FSHD China. TikTok will be reaching out to Chinese pop stars and other celebrities, who will share a 15-second… Read More »
Sharpen your orange slicers and polish your selfie sticks! World FSHD Day is on June 20th and you can help us turn social media world orange on that day by sharing the World FSHD Day logo and your orange slice selfie photos. If you want to make an even bigger splash, how about planning a… Read More »
Check out this audio from an interview with Sue Aumiller, director of our Columbus Ohio chapter, with Mark Blazor from Columbus’s top local station, 610-WTVN. Mark read the Columbus Dispatch’s story about Sue and her family and felt compelled to call. When you open one door, others open too. Way to go Sue!