By Russell Caratenuto, FSH Society Ambassador As a child I never second-guessed my ability to stick out my shoulder blades and make what my friends would call “wings”. This difference never stopped me from being the most athletic child I could possibly be. Up until puberty, I was among the fastest, strongest, and most physically… Read More »
FSH Society Ambassador Carden Wyckoff recently created a series of posts on Avelist regarding misconceptions and living with FSHD. Below is her latest post on living with muscular dystrophy as she hopes to open minds and bring awareness to the various types of disabilities people live with on a daily basis. For more articles, please… Read More »
You can share images and facts about FSHD over your social media channels by visiting our #CureFSHD campaign page here.
By Kristin Duquette My body constantly changes and at times, I feel like there’s nothing I can do about it. Every time I lose another piece of mobility, my mind flashes back to memories and experiences of loss contributed to my body and this condition. I break down because sometimes it’s just too much to… Read More »
By Mia Archuleta, Granbury, Texas I have been thinking about people wondering exactly how the FSHDselfies have brought awareness to FSH dystrophy. Here are just a few examples of my journey since posting them. I attend a Bible study group that I absolutely love. In the year that I have been there, everyone has welcomed… Read More »