by Mark Stone It is with deep sadness that I share the news that Howard Chabner, our Board Vice Chair and a longtime supporter of the FSHD Society, has passed […]
Written by Howard Chabner, Board Vice Chair, and shared on behalf of the entire FSHD Society Board of Directors The Board of Directors of the FSHD Society is deeply saddened […]
While his family and our community morns the loss, I want to honor the life of Dan Perez, a man whose vision, determination, and heart changed the course of FSHD […]
by Beth Johnston Earlier this month, we added the 4th Canadian Chapter to the roster of our growing FSHD Communities! The Quebec Chapter is led by father/son duo Sylvain and […]
By June Kinoshita As I step into a new chapter of my life, I find myself reflecting on the extraordinary 13-year journey I’ve had with the FSHD Society. What began […]
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