In our webinar on “Accelerating Therapy Development: The Patient Community Role,” Molly White, Vice President, Medical Communications & Advocacy at Dyne Therapeutics, discusses the many ways in which your efforts,… Read More »
The community’s role in accelerating therapies
A success for the virtual 2020 International Research Congress
by Jamshid Arjomand, PhD, Chief Science Officer, FSHD Society Our original plan for 2020 was to host the International Research Congress (IRC) in Washington, DC, in proximity to the FDA… Read More »
A giant of FSHD research shares his “regrets”
In his keynote lecture from this year’s International Research Congress on FSHD, held virtually on June 25-26, George Padberg, MD, regarded as the father of modern FSHD research, shared observations… Read More »
UCLA Health – Southern California’s Frontlines of FSHD Research
Nestled into a basement in an outpatient building at UCLA Health’s Westwood hospitals is UCLA Neurology, home to ground-breaking FSHD Research. UCLA Health already ranks as the #1 hospital… Read More »
2020 Young Investigator Awards
The FSHD Society is proud to announce that three highly deserving individuals are each being given a Young Investigator Award for 2020. This award recognizes junior researchers who show exceptional… Read More »