“Never give up, for that is just the place and time that the tide will turn.”–Harriet Beecher Stowe As we enter a new decade – one that we believe will… Read More »
FSHD Advocate on the Road to Clinical Trials
Genetic testing for FSHD—a new frontier
There are exciting new developments in FSHD genetic testing. A genetic test for FSHD is now being offered by PerkinElmer Genomics, a global company known for scientific and medical testing… Read More »
How are you treating symptoms now?
Our Voice of the Patient Forum on April 21st is our community’s platform to testify to the FDA on the impact of FSHD. When the FDA considers whether to approve… Read More »
What worries you about the future?
Our Voice of the Patient Forum on drug development for FSHD will take place on April 21st. This landmark event is our community’s platform to testify to the FDA on… Read More »
Which symptoms have the biggest impact on your life?
On April 21, the FSHD Society is convening its landmark Voice of the Patient Forum, our community’s opportunity to testify to the FDA on the impact FSHD. An important question… Read More »