The FSH Society, the Massachusetts-based charitable foundation that has transformed the science of a little-known disease, facioscapulohumeral muscular dystrophy (FSHD), today announced its Biennial International Network Meeting. The meeting will… Read More »
FSH Society’s International Meeting to Bring Together Patients & Researchers From Around the World to Explore New Insights on Rare Disease
FSH Watch Winter 2012
Highlights include: FSH Society Annual Donor Report Grant awards for August 2011 FSH Society 2012 International Patient/Researcher Network Meeting Still Walking by Bill Moss, an “inspirational, moving, blunt and at… Read More »
#FSHDselfies Shoot a Selfie, Raise Awareness
selfie noun, informal – a photograph that one has taken of oneself, typically one taken with a smartphone or webcam and uploaded to a social media website – Oxford Dictionary Our national… Read More »
Opera legend Frederica von Stade to sing for FSH Society
From PRWeb On Thursday July 24, 2014, the FSH Society will hold a very special benefit concert at Yoshi’s Jazz Club in San Francisco with opera’s legendary singer, Frederica von Stade, who… Read More »
FSH Watch Spring 2014
You can read and download it by clicking here. Highlights of this issue include the following: Details about FSHD Connect, our biennial meeting that brings together patients and families with… Read More »