Watertown, MA–Daniel Perez, co-founder, President and CEO of the FSH Society and a 48-year-old patient with facioscapulohumeral muscular dystrophy (FSHD), the most common form of muscular dystrophy, hailed new findings, published today in Science, that revealed for the first time the biological mechanism causing FSHD. “This is a long-sought explanation of the exact biological workings of… Read More »
Highlights include: Report from Paris: Research Institution Makes Inroads Roberts Nutrition Research Fellowship Grant The Roaring 20’s: A night of wonderful nonsense End of tax season celebration for FSH Muscular Dystrophy And much more! Read or download the full 2010 Spring Watch here.
Highlights include: FSH Society and Boston Biomedical Research Institute host international conference on most prevalent form of muscular dystrophy FSH Society funds infantile FSHD research Breathing and respiration in neuromuscular disease FSH Society Annual Donor Report 2009 And much more! Read or download the full 2010 Winter Watch here.
Highlights include: On the road to treatment: Biomarkers will lead the way FSH Society advocacy efforts in Washington, D.C., continue to yield big gains in research funding Chronic pain in people with FSHD FSH Society launches peer-to-peer team And much more! Read or download the full 2009 Fall Watch here.
Our 2009 annual review of scientific research funded by the FSH Society was published in the Summer 2009 issue of the FSH Watch newsletter. The issue includes a list of the top papers from the year with comments about their significance, opportunities for research volunteers, and the latest Society news from 2009. The full issue is available here to… Read More »