Here are the agenda, speaker biographies, and presentation materials from our Miami FSHD Family Day Conference, which was held on Saturday, February 23, 2019, at the beautiful Newman Alumni Center… Read More »
Miami FSHD Family Day Talks
Bay Area FSHD Family Day Conference
Register here! Join us on Sunday, April 28, for our Bay Area FSHD Family Day conference. It will be held from 1:00-6:00 pm at the beautiful Li Ka Shing Center… Read More »
Team FSHD Skyland Trail will compete in the 2019 Race Across America
From PRWeb The FSHD Society and Skyland Trail today announce that they are jointly entering an eight-person team in the 2019 Race Across America (RAAM) to raise funds for their respective causes. The two… Read More »
Chicagoland chapter members invite you to their Walk & Roll to Cure FSHD!
“For all my friends and family out there who haven’t heard, I have recently been diagnosed with FSHD which is a form of muscular dystrophy. It is a progressive disease… Read More »
Cure FSHD? Now is the time!
We can do more than simply aspire to a treatment in some undefined future. We are confident that, with your continued support, we will have treatments for FSH muscular dystrophy… Read More »