Carla Grosmann, MD, of the Kennedy Krieger Institute and University of California San Diego gave this talk about bone health at the FSH Society’s Mid-Atlantic patient network meeting on June 27, 2015. We recommend listening through earphones as the audio did not record well. To download slides, click -> Carla Grosmann MD, Bone health in FSHD…. Read More »
Special talk by Dr. Carla Grosmann from the Kennedy Krieger Institute Mid-Atlantic Patient Meeting Saturday, May 2, 2015. Noon-3:00 PM Will be live streamed over the FSH Society’s YouTube channel. Bone health is a topic that until recently has not been discussed in the context of FSHD, but we are beginning to realize that it is… Read More »
Here are the slide decks from the 2014 FSHD Connect conference. We are still missing a few and are working to complete the collection. Alexandra Belayew: Several ways to go DUX hunting FSH Society: FSHDselfies campaign FSH Society: Fundraising workshop Jefferey Statland: Unlocking the clinical trial toolbox Kathryn Wagner: Progress towards clinical trials Louis Kunkel:… Read More »
Best practice guidelines on genetic diagnostics of FSHD are now available and published in the journal Neuromuscular Disorders! FSH Society sponsors workshop held June 9, 2010, in Leiden, The Netherlands.