Join us on April 25th, 9:00 PM EST / 8:00 PM CST for a live, on-air interview with Jennifer Egert, Ph.D., a clinical psychologist with FSHD who offers mindfulness based psychotherapy… Read More »
Talk Radio: Mindfulness with Dr. Jennifer Egert
FSHD Connect pre-conference workshop: A Mindful Way through FSHD
Flamingo Las Vegas, Carson City ballrooom Saturday, June 9, 2018 9:30-11:00 AM PST An experiential workshop for patients, family members, and friends for managing stress, illness, and disability. This is… Read More »
Webinar: Psychological interventions to improve well-being in muscle diseases
https://www.youtube.com/watch?v=s67L70Acul4 Note: The video will be posted only until May 31, 2018. Download Chris Graham’s Slide Deck. In this talk, focusing mostly on his group’s work in muscle disorders, Chris… Read More »
FSH Society Talk Radio Live Support Group!
Join us on March 28th, 9:00 PM EST / 8:00 PM CST for a live, on-air support group session with the regulars at Connecticut Connections, the FSH Society’s member group… Read More »
Knowing others who share your diagnosis makes you happier
Findings from major study of long-term disability We at the FSH Society have long believed that helping individuals and families with FSHD meet one another is one of the most… Read More »