“Muscular dystrophy is something I might have,” Levinson said. “But it doesn’t define who I am.” Ryan Levinson, of San Diego California, was diagnosed with Fascioscapulohumeral muscular dystrophy (FSHD) in 1996. Though he suffers from muscle loss typical of most people with FSHD, and can no longer hold up his arms, do a sit up,… Read More »
Our latest publication from FSH Society’s Living with FSHD Series is now available! For details HERE. To read the “FSHD: A Guide for Schools” on-line PDF
Best practice guidelines on genetic diagnostics of FSHD are now available and published in the journal Neuromuscular Disorders! FSH Society sponsors workshop held June 9, 2010, in Leiden, The Netherlands.