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Live Facebook Q&A session Friday, November 13 10:30-11:00 AM Pacific Time Mark you calendar for this real-time Q&A session with Julie Hershberg PT, DPT, NCS. She will be on the… Read More »
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Dancer with FSH muscular dystrophy has a documentary dream
By June Kinoshita When I attended the Los Angeles Ghostly Gala last week, I met an extraordinary woman, Donna Russo, an actress and dancer with FSH muscular dystrophy. Donna told me… Read More »
Ghostly Gala to auction luxury leather goods with a back story
The Ghostly Gala, the first-ever fundraising gala in Los Angeles for the FSH Society, has scored another coup with the donation of a collection of stylish, exquisitely crafted leather accessories from… Read More »
New brochure on facioscapulohumeral muscular dystrophy
We’re excited to announce the arrival of our new “About FSHD” brochure. Updated with the latest information on genetics, symptoms, diagnosis, patient care and more, this is your essential guide… Read More »
Webinar with Dr. Rabi Tawil
Thursday October 1, 2015 8:00-9:00 PM EST The FSH Society is delighted to host this webinar and Q & A session with Rabi N. Tawil, MD. Dr. Tawil is Co-Director of the… Read More »