A new short film directed by Academy Award-winning New Zealand filmmaker Taika Waititi features Dr. Tristram Ingham, a physician and disability advocate living with FSHD. The film was made in… Read More »
FSHD advocate in film about Apple Personal Voice
Shaking Qigong to relax your body
Here’s something to help you relax after the stress of the holidays. Our December 2023 meeting of the Feeling Fit group featured Qigong instruction by member Trish Kean. You… Read More »
Clinical care vs. clinical research
Know the difference by Amanda Hill, FSHD Society In your journey with FSHD, you’ve probably heard about the importance of seeing your doctor regularly. You also most likely have heard… Read More »
Treatments for FSHD: A broader view
There are already many effective interventions by Nicol Voermans, MD PhD, Radboud University Medical Center We hear that currently there is “no cure for FSHD,” but this does not mean… Read More »
Kitchen Confidential
Tips and tricks from our Women on Wellness Zoom group’s October meeting on Adaptive Cooking and Adaptive Eating. Notes by Helen Cave and Ranae Beeker, RN. One member has reorganized… Read More »