When the going gets tough, your team will hold you up by Leigh Reynolds, FSHD Society Army Command Sgt. Maj. Gretchen Evans earned the highest rank an enlisted soldier can… Read More »
Find your rope team
Feeling Fit with Lonwabo Nene
Disclaimer: Information provided by the FSHD Society does not imply an endorsement of any of the drugs, procedures, treatments, or products discussed. Please consult your own healthcare provider about any… Read More »
Stay warm and safe
Our monthly Wellness Hour invited Dr. Mark Tarnopolsky of McMaster University to discuss an issue that many with FSHD face in winter: feeling especially susceptible to cold temperatures. He explains… Read More »
Teaching future doctors about FSHD
If we want to control the narrative, we need to tell our stories by Brian Jude Loiacono I was formally diagnosed with FSHD in January 2019. At that time I… Read More »
Feeling Fit with low-impact seated exercises
Disclaimer: Not every exercise is appropriate or safe for every individual, so please use your best judgement and consult your health care provider. Priscilla Sharun is a fitness enthusiast and… Read More »