Volunteering for research, feeling the weight of responsibility By David Lukas, Village of Lakewood, Illinois I was diagnosed with FSHD in April 2015. In October 2015, I participated a clinical… Read More »
The last one in
A portrait of Pierre, who lives with FSH muscular dystrophy
Check out this wonderful short documentary about Pierre, a 40-year-old who has shared this intimate view of what it is like to live with facioscapulohumeral muscular dystrophy.
Ask the Physical Therapist: Shoulder blades and high arches
From the FSH Society’s Facebook Q&A session with Julie Hershberg, PT, DPT, NCS. Hershberg is a Board Certified Neurologic Specialist. She practices at [re+active] physical therapy & wellness and is an instructor in Doctor… Read More »
Ask the Physical Therapist: Can braces or taping assist weak muscles?
The following is from the transcript to a session conducted on Friday, November 13, 2015, over the FSH Society’s Facebook page with Julie Hershberg PT, DPT, NCS. Hershberg is a physical… Read More »
Music Therapy and Facioscapulohumeral muscular dystrophy
The Los Angeles FSHD Connects group will be meeting on Saturday, February 13.FSH muscular dystrophy can weaken muscles involved with breathing, so we invited Chris Anderson, a music therapist who uses… Read More »